Peran Koherensi terhadap Kelentingan Keluarga yang Memiliki Anak dengan Spektrum Autistik (ASA)
Abstract
Families of children with autism spectrum disorder experience a number of challenges in life, both physically, psychologically and socially. Families who can adapt effectively will be functioning well and prosper. They are not only survived, but also able to gain some positive benefits from the difficult situations. The purpose of this study was to analyze the role of family sense of coherence on family resilience among Families of children with autism spectrum disorder, based on mother's perspective as the primary caregiver. This study also wants to identify the difference of family sense of coherence and family resilience level based on several demographic factors such as the number of children, the age of Autistic children, the age of participant (mother), the amount of family expenditure, level of education, and length of diagnosis. Using quantitative approach with associative design, subjects in this research are 148 mothers who have a child with autism, living in Jabodetabek area. Data were obtained through questionnaire-based research instruments, which is Walsh Family Resilience Questionnaire and The Family Sense of Coherence Scale. The questionnaires were distributed to research participants through foundation or school concerned in autistic children. The data have been obtained and then analyzed by simple regression analysis. The result indicated that family sense of coherence has a positive and significant correlation between family resilience. It is indicated that family sense of coherence can help us to understand how a family becomes resilient when facing a difficult situation.
References
Almedom, A. M. (2005). Resilience, hardiness, sense of coherence, and posttraumatic growth: all paths leading to “light at the end of the tunnel”. Journal of Loss and Trauma. 10, 253-265. DOI:10.1080/15325020590928216
Antonovsky, A., & Sourani, T. (1988). Family sense of coherence and family adaptation. Journal of Marriage and Family. 50, 79-92.
Apostelina, E. (2012). Resiliensi keluarga pada keluarga yang memiliki anak autis Jurnal Penelitian dan Pengukuran Psikologi, 1(1), 164-176
Azwar, S. (2012). Penyusunan skala psikologi. Yogyakarta. ID: Pustaka Pelajar.
Bashir, A., Bashir, U., Lone, A., & Ahmad, Z. (2014). Challenges faced by family of autistic children. International Journal of Interdiciplinary Research and Innovation. 2(1), 64-68.
Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research. 51(9), 702-7014. DOI: 10.1111/j.1365-2788.2007.00960.x.
Bergh, I., & Bjork, M. (2012). Sense of coherence over time for parents with a child diagnosed with cancer, BMC Pediatrics. 12(79), 1-5. DOI: 10.1186/1471-2431-12-79.
Boham, S.E. (2013). Pola komunikasi orang tua dengan anak autis: studi pada orang tua dari anak autis di sekolah luar biasa AGCA Center Pumorow Kelurahan Banjer Manado. Jurnal Acta Diurna, 2(4), 1-18
Brody, A.C., & Simmons, L.A. (2007). Family resiliency during childhood cancer: The father’s perspective, Journal of Pediatric Oncology Nursing. 24(3), 152-165. DOI: 10.1177/1043454206298844.
Coyle, J. (2005). An exploratory study of the nature of family resilience. Proquest Dissertations and Thesis. (UMI:2174146)
Eriksson, M., & Lindstrom, B. (2006). Antonovsky’s sense of coherence scale and the relation with health: a systematic review. Journal of Epidemiology Community Health. 60, 376-381. DOI: 10.1136/jech.2005.041616.
Farida, F. (2015). Bimbingan keluarga dalam membantu anak autis (kehebatan motif keibuan). Konseling Religi. 6(1), 63-88.
Finkelstein, M. (2016). Risk and resilience factors in families under ongoing terror along the life cycle. Contemp Fam Ther, 38, 129-139. DOI: https://doi.org/10.1007/s10591-015-9356-4.
Greeff, A. P., Vansteenwegen, A., & Herbiest, T. (2011). Indicators of family resilience after the death of a child. Omega. 63(4), 343-358. DOI: 10.2190/OM.63.4.c.
Greeff, A.P., & Van Der Walt, K.J. (2010). Resilience in families with autistic child. Education and Training in Autism and Developmental Disabilities. 45(3), 347-355.
Greeff, A.P., & Wenworth, A. (2009). Resilience in families that have experienced heart-related trauma. Current Psychology. 28, 302-314. DOI: https://doi.org/10.1007/s12144-009-9062-1.
Hayas, C.L., Arroyabe, E.L., & Calvete, E. (2015). Resilience in family caregivers of persons with acquired brain injury. Rehabilitation Psychology. 60(3), 295-302. DOI: 10.1037/rep0000040.
Herbst, L., Coetzee, S., & Visser, D. (2007). Personality, sense of coherence and the coping of working mother.SA Journal of Industrial Psychology. 33(3), 57-67.
Iriani, L. P., Syafiq, M. (2017) Gambaran hope pada seseorang penyandang tunarungu wicara yang berprestasi. Character: Jurnal Psikologi Pendidikan. 4 (3),1-6
Kinanthi, M. R. (2017). Resiliensi keluarga: Upaya memperkuat ketahanan diri anti narkoba berdasarkan perspektif psikologi keluarga, Makalah dipresentasikan pada Focus Group Discussion Penyusunan Instrumen Ukur Ketahanan Diri Bersih Narkoba. Badan Narkotika Nasional. Jakarta. Indonesia.
Kusumastuti, A. N. (2014). Stres ibu tunggal yang memiliki anak autis. Jurnal Psikologi. 2(7), 54-60.
Langeland, E., Kristoffersen, K., Klopstad, W. A., & Rokne, B. (2007). Sense of coherence predicts change in life satisfactionamong home-living resident in the community with mental health problems: a 1-year follow up study. Quality of Life Research. 16(6), 939-946, DOI: https://doi.org/10.1007/s11136-007-9199-z
Lazarus, R. S. (1991). Emotion and adaptation. New York. USA: Oxford University Press.
Lennon, S.L., & Heaman, M. (2015). Factors associated with family resilience during pregnancy among inner-city women Midwivery. 31, 957-964.DOI: http://dx.doi.org/10.1016/j.midw.2015.05.007.
Leone, E., Dorstyn, D., & Ward, L. (2016). Defining resilience in families living with neurodevelopmental disorder: a preliminary examination of Walsh’s framework. Journal of Developmental and Physical Disabilities. 28(4), 595-608. DOI:https://doi.org/10.1007/s10882-016-9497-x.
Lester, P., Stein, J.A., Saltzman, W., Woodward, K., McDermid, S,W., Milburn, N., Mogil, C., & Beardsless, W. (2013). Psychology health of military children: longitudinal evaluation of a family centered prevention program to enhance family resilience. Military Medicine. 178(8), 838-845. DOI: 10.7205/MILMED-D-12-00502.
Lidanial. (2014). Problematika yang dihadapi keluarga dari anak dengan intellectual disability (studi etnografi) (Tesis). Universitas Pendidikan Indonesia. Bandung. Indonesia.
Lindstrom, B., & Eriksson, M. (2005). Salutogenesis, Journal of Epidemiology Community Health, 59, 440-442, DOI: 10.1136/jech.2005.034777
Mahabbati, A. (2009). Penerimaan dan kesiapan pola asuh ibu terhadap anak berkebutuhan khusus. Jurnal Pendidikan Khusus. 5(2), 75-82.
Marchant, P. (2006). Autistic spectrum disorders and Asian children. British Journal of Educational Psychologist. 54(2), 230-244. DOI: 10,1111/j.1467-8527.2006.00342.x.
Marsh, S. C., Clinkinbeard, S. S., Thomas, R. M., & Evans, W. (2007). Risk and protective factors predictive of sense of coherence during adolescence. Journal of Health Psychology. 12 (2), 281-284.DOI: https://doi.org/10.1177/1359105307074258.
Mash & Wolfe. (2005) Abnormal Child Psychology. 3 rd ed. USA: Thomson Learning Inc.
McCubbin, M., Balling, K., Possin, P., Frierdich, S., & Byrne, B. (2002) Family resiliency in childhood cancer. Family Relation. 51 (2), 103-111
Milyawati, L., & Hastuti, D. (2009). Dukungan keluarga, pengetahuan, dan persepsi ibu serta hubungannya dengan strategi koping ibu pada anak dengan gangguan autism spectrum disorder. Jurnal Ilmu Keluarga dan Konsumen. 2(2), 137-142. DOI: http://dx.doi.org/10.24156/jikk.2009.2.2.137.
Misquiatti, A.R.N., Britto, M.C., Ferreira, F.T.S., & Assumpcao Jr, F.B. (2015). Family Burden and Childern with Autism Spectrum Disorders: Perspectives of Caregivers.Family Autism. 17(1), 192-200, DOI: http://dx.doi.org/10.1590/1982-0216201520413
Moen, L. O., & Hall-Lord, M. L. (2016). Reliability and validity of the Norwegian family sense of coherence. Open Journal of Nursing. 6, 1075-1086. DOI:10.4236/ojn.2016.612102
Muniroh, S. M. (2010). Dinamika resiliensi orang tua anak autis. Jurnal Penelitian. 7(2), 1-11.
Nainggolan, J. A. Penyesuaian diri orangtua dan keberfungsian keluarga yang memiliki anak penyandang autisme di Samarinda. eJournal Psikologi, 4 (2), 215-226
Ngai, F. W., & Ngu, S. F. (2014). Family sense of coherence and family adaptation among childbearing couples Journal of Nursing Scholarship. 46(2), 82-90 DOI: 10.1111/jnu.12045
Okezone.com. (2 April 2015). Autisme di Indonesia semakin meningkat. Diambil dari http://lifestyle,okezone,com/read/2015/04/02/481/1128312/autisme-di-indonesia-terus-meningkat. [Diunduh pada 24 September 2016].
Oktarina, R., Krisnatuti, D., & Muflikhati, I. (2015) Sumber stress, strategi koping, dan tingkat stress pada buruh perempuan berstatus menikah dan lajang. Jurnal Ilmu Keluarga dan Konsumen, 8 (3), 133-141, DOI: http://dx.doi.org/10.24156/jikk.2015.8.3.133
Olsson, B. M., & Hwang, P. C. (2002). Sense of coherence in parents of children with different developmental disabilities. Journal of Intellectual Disability Research. 46(7), 548-559
Pamungkas, A. (2015). Pelatihan keterampilan pengasuhan autis untuk menurunkan stres pengasuhan pada ibu dengan anak autis. Empathy. 3(1), 1-22.
Pandanwati, K. I. S., & Suprapti, V. (2012). Resiliensi keluarga pada pasangan dewasa madya yang tidak memiliki anak. Jurnal Psikologi Pendidikan dan Perkembangan. 1(3), 1-8.
Pisula, E., & Kossakowska, Z. (2010). Sense of coherence and coping with stress among mothers and fathers of children with autism. Journal Autism development disorder. 40(12), 1485-1494. Doi: 10,1007/s10803-010-1001-3.
Porterfield, S.L., & McBride, T.D. (2007). The effect of poverty and caregiver education on perceived need and access to healthservices among children with special health care needs. American Journal of Public Health. 97(2), 323-329. Doi: 10,2105/AJPH,2004,055921.
Rahayu, S.M. (2015). Deteksi dan intervensi dini. Jurnal Pendidikan Anak. 3(1), 420-428.
Sa’diyah, S. (2016). Gambaran psychological wellbeing dan stres pengasuhan ibu dengan anak. Makalah dipresentasikan dalam Seminar ASEAN 2nd Psychology and Humanity. Universitas Muhammadiyah Malang. Indonesia.
Safaria, T. (2005). Autisme:Pemahaman Baru untuk Hidup Bermakna Bagi Orang Tua. Yogyakarta: Graha Ilmu
Schweigert, E. K. (2011). Predictor of successful parents adjustment and family functioning in families with autistic children (Disertasi). University of Wisconsin-Madison. Wisconsin. Amerika Serikat.
Sullivan, M. (2003). When life says you can’t: creativity and resilience in families with autistic children residing in New Jersey and Ireland (Disertasi). Drew University, New Jersey. Amerika Serikat.
Van Schoors, M., Caes, L., Verhofstadt, L.L., Goubert, L., & Alderfer, M.A.(2015). Systematic review: family resilience after pediatric cancer diagnosis. Journal of Pediatric Psychology. 40(9), 856–868. Doi: 10,1093/jpepsy/jsv055.
Vetrayan, J., Daud, A., & Paulraj, J.S.P.V. (2013). Level of hopelessness among parents with autistic children. Indian Journal of Health and Wellbeing. 4(4), 875-878.
Walsh, F. (2002). A family resilience framework: Innovative practice application. Family Relations. 51(2), 130-137. Doi: 10,1111/j,1741-3729,2002,00130,x.
Walsh, F. (2003). Family resilience: a framework for clinical practice, Family Process. 42(1), 1-18 Doi: 10,1111/j,1545-5300,2003,00001,x.
Walsh, F. (2006) Strengthening Family Resilience (2rd Edition). New York. The Guildford Press
Wandasari, W. (2012). Hubungan antara resiliensi keluarga dan koherensi keluarga pada mahasiswa yang berasal dari keluarga miskin (Skripsi).Universitas Indonesia. Depok. Indonesia.
Wang, P., Michaels, C.A., & Day, M.S. (2011). Stressesand coping strategies of Chinese families with children with autism and other developmental disabilities.J Autism Dev Discord, 41, 783-795. Doi: 10,1007/s10803-010-1099-3.
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