Overcoming Parent Strategies with Down Syndrome (DS) Children
Abstract
Being a part of the family who has children with special needs like Down Syndrome (DS) of course really challenging for facing daily activities with children with DS around. The aim of this literature review is to reveal about how parents of children with DS applied coping strategy to face daily life and support their child. The sources were collected online from 4 journals databases. Those databases are ProQuest, SAGE Journals, Science Direct, and ERIC. Articles that were taken by researcher were published in year 2009-2019. Researcher found 179 journals and selected by screening inclusion and exclusion criteria, the final amount of conducted and reviewed journals are 12 papers. Based on review that had been done, all of the parents of children with DS did some kinds of coping strategy in parenting. The strategies that used are: attribution technique in accepting their child’s condition, implementing the positive attitude towards their children’s condition, getting more intense in religious activity and got closer to God, looking for the organization and community that related to DS, and also doing more sports or outdoor activity as a coming out purpose. Finding out the parents’ coping strategy and the impact for the DS child will be the basis of conducting parenting program effectively and hopefully this program will be effective in optimizing the development of DS child.Downloads
References
Alesi, M. (2017). Investigating parental beliefs concerning facilitators and barriers to the physical activity in down syndrome and typical development. SAGE Open. doi: 10.1177/2158244016687799.
Antonovsky, A. (1995). Rozwiklanie tajemnicy zdrowia. Jak sobie radzic ze stresem [Unraveling the Mystery of Health. How to cope with stress]. Warsaw: Fundation IPN.
Boyce, G. C., Behl, D., Mortensen, L., & Akers, J. (1991). Child characteristics, family demographics and family processes: Their effects on the stress experienced by families of children with disabilities. Counseling Psychology Quarterly, 4(4), pp. 273-288. doi: 10.1080/09515079108254436.
Bristol, M. M. (1984). Family resources and successful adaptation to autistic children. In E. Schopler & G. B. Mesibow (Eds.), The effects of autism on the family (pp. 289-310). New York: Plenum Press.
Cless, J., D., Goff, B., S., Nelson, & Durtschi, J., A. (2017). Hope, coping, and relationship quality in mothers of children with down syndrome. Journal of Marital and Family Therapy, 44(2), pp. 307–322 doi: 10.1111/jmft.12249.
Critical Appraisal Skills Programme (CASP), 2010. 10 Questions to Help You Make Sense of Qualitative Research. Retrieved in April 2018. http://www. caspinternational.org/mod_product/uploads/CASP%20Qualitative%20Research%20Checklist%2031.05.13.pdf.
Cummings, G., & Estabrooks, C. A. (2003). The effects of hospital restructuring that included layoffs on individual nurses who remained employed: A systematic review of impact. International Journal of Sociology and Social Policy, 23(8/9), pp. 8-53. doi: 10.1108/01443330310790633.
Cunningham, C. (1996). Families of children with Down syndrome. Down Syndrome Research and Practice, 4(3), pp. 87–95. doi:10.3104/perspectives.66.
Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre‐school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), pp. 266-280. doi: 10.1111/j.1365-2788.2010.01258.x.
Daire, A., P., Dominguez, V.,N., Carlson, R.,G., and Case-Pease, J. (2014). Family adjustment measure: Scale construction and validation. Measurement and Evaluation in Counseling and Development, 47(2), pp. 91–101. doi: 10.1177/0748175614522270.
Duranovic, M., Klasnic, I., & Opic, V. (2017). A child with Down syndrome - Challenge for families, kindergartens and schools. New Trends and Issues Proceedings on Humanities and Social Sciences, 5, pp. 32-41.
Glidden, L. M., Billings, F. J., & Jobe, B. M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), pp. 949–962. doi: 10.1111/j.1365-2788.2006.00929.x.
Goff, B., S., Nelson, M., J., Kale, M., Juliana, S., Natira, T., A., & Springer, N.,P.. (2016). Comparing parents of children with down syndrome at different life span stages. Journal of Marriage and Family, 78, pp. 1131–1148. doi:10.1111/jomf.12312.
Graungaard, A. H., & Skov, L. (2007). Why do we need a diagnosis? A qualitative study of parents’ experiences, coping and needs, when the newborn child is severely disabled. Child: care, health and development, 33(3), pp. 296-307. doi:10.1111/j.1365-2214.2006.00666.x.
Greer, F. A., Grey, I. M., & McClean, B. (2006). Coping and positive perceptions in Irish mothers of children with intellectual disabilities. Journal of intellectual disabilities, 10(3), pp. 231-248. doi: 10.1177⁄1744629506064017.
Hassall, R., Rose, J., & McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support. Journal of intellectual disability research, 49(6), pp. 405-418. doi: 10.1111/j.1365-2788.2005.00673.x.
Joosa, E., & Berthelsen, D. (2006). Parenting a child with Down syndrome: A phenomenographic study. Journal on Developmental Disabilities, 12(1S2), 45–58. Retrieved from http://www.oadd.org/index.php?page=142
Kayhan, N., Özaydın, L. (2018). The quality of mainstreaming in preschool: The views of parents of children with Down syndrome. Journal of Education and Learning; 7 (2). doi:10.5539/jel.v7n2p157.
King, G., Baxter, D., Rosenbaum, P., Zwaigenbaum, L., & Bates, A. (2009). Belief systems of families of children with autism spectrum disorders or Down syndrome. Focus on Autism and Other Developmental Disabilities, 24(1), pp.50–64. doi:10.1177/1088357608329173.
Kirk, S., Gallagher, J.,J., Coleman, M.,R., & Anastasiouw, N. (2009). Educating exceptional children. New York: Houghton Mifflin Harcourt Publishing Company.
Lazarus, R.,S. (1993). Coping theory and research: Past, present, and future. Psychosomatic Medicine, 55, 234–247. Retrieved from http://www.emotionalcompetency.com/papers/coping%20research.pdf.
MacDonald, E.,E., Hastings, R.,P. (2010). Mindful parenting and care involvement of fathers of children with intellectual disabilities. J Child Fam Stud, 19, pp. 236–240. doi 10.1007/s10826-008-9243-9.
Matthieu, M. M., & Ivanoff, A. (2006). Using stress, appraisal, and coping theories in clinical practice: Assessments of coping strategies after disasters. Brief Treatment and Crisis Intervention, 6(4), pp. 337–348. doi:10.1093/brief-treatment/mhl009
Nawi, A., M., Ismail, A., & Abdullah, S. (2013). The impact on family among down syndrome children with early intervention. Iranian J Publ Health, 42(9).
Norizan, A., & Shamsuddin, K. (2010). Predictors of parenting stress among Malaysian mothers of children with Down syndrome. Journal of Intellectual Disability Research, 54(11), pp. 992-1003. doi: 10.1111/j.1365-2788.2010.01324.x.
Pargament, K. I. (1997). The psychology of religion and coping. New York: Guilford Press.
Poehlmann, J., Clements, M., Abbeduto, L., & Farsad, V. (2005). Family experiences associated with a child's diagnosis of fragile X or Down syndrome: Evidence for disruption and resilience. Mental retardation, 43(4), pp. 255-267.
Quine, L., & Pahl, J. (1987). First diagnosis of severe handicap: a study of parental reactions. Developmental Medicine & Child Neurology, 29(2), pp. 232-242.
Reilly, C., Murtagh, L. & Senior, J. (2015). The impact on the family of four neurogenetic syndromes: A comparative study of parental views. J Genet Counsel, 24, pp. 851–861. doi 10.1007/s10897-015-9820-1.
Samuel-Kirk, J.,J. (2009). Educating exceptional children. Boston, New York, United States: Houghton Mifflin Harcourt Publishing.
Skotko, B.,G. (2005). Communicating the postnatal diagnosis of Down’s syndrome: An international call for change. Italian Journal of Pediatrics, 31(4), pp. 237.
Skotko, B., & Bedia, R. C. (2005). Postnatal support for mothers of children with down syndrome. Mental Retardation, 43(3), pp. 196 – 212. doi:10.1352/00476765 (2005) 43[196:PSFMOC]2.0.CO;2
Sheets, K.,M., Baty, B.,J., Vázquez, J.,C., Carey, J.,C., & Hobson, W., L. (2012). Breaking difficult news in a cross-cultural setting: A qualitative study about latina mothers of children with Down syndrome. J Genet Counsel, 21, pp. 582–590. doi: 10.1007/s10897-011-9425-2.
Staats, N.,G., Briana S., N., Springer, N., & Monk, J.,C. (2015). Parents of children with Down syndrome: A comparison of prenatal and postnatal diagnosis groups. Journal on Developmental Disabilities, 21(2).
Sullivan, A. (2002). Gender differences in coping strategies of parents of children with Down syndrome. Down Syndrome Research and Practice, 8(2), pp. 67–73. doi: 10.3104/reports.132.
Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19, pp. 251–260. doi:10.1111/j.1745-7599.2007.00222.x.
Van Der Veek, S. M., Kraaij, V., & Garnefski, N. (2009). Down or up? Explaining positive and negative emotions in parents of children with Down's syndrome: Goals, cognitive coping, and resources. Journal of intellectual and Developmental Disability, 34(3), pp. 216-229.
Van Riper, M. (2007). Families of children with Down syndrome: responding to “a change in plans” with resilience. Journal of pediatric nursing, 22(2), pp. 116-128.
Weiten, W. (2014). Psychology: Themes and variations, Briefer Version, 8th ed. [Instructor's Edition] (8th ed.). US: Cengage.
Woodman, A. C., & Hauser-Cram, P. (2013). The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities. Journal of Intellectual Disability Research, 57(6), pp. 513–530. doi: 10.1111/j.1365-2788.2012.01555.x.
Authors who publish with this journal agree to the following terms:
- Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution 4.0 International License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
- Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
- Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access).
_001.png)
